Suzette Vermaak, of Mandini on the KwaZulu-Natal north coast, cannot stand up any more and can barely use her hands.
Vermaak, 49, has adult onset Pompe disease and desperately needs a drug that will improve her breathing and help her walk again.
But her medical aid, Bestmed – which acknowledges that the disease is a prescribed minimum benefit condition – will not pay for the treatment, calling it unaffordable.
The Medical Schemes Act states that diseases falling under a prescribed minimum benefit must be treated by law.
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